Up until 3 years ago, I, like many other people had never heard of Infantile Spasms. It wasn’t until one of my best friends was given the horrifying news, that her beautiful baby boy had been diagnosed with the condition, that I became aware of it.
For those of you unfamiliar with the condition…
Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in a baby’s brain and include repetitive, but often subtle movements—such as jerking of the mid-section, dropping of the head, raising of the arms or wide-eyed blinks. IS can be misdiagnosed as colic, reflux, or a startle reflex.
This week is Infantile Spasms Awareness Week #ISAW2018 and I wanted to share with you (with her permission of course) the following post from my friend, which shows what they went through before receiving the diagnosis, to help raise awareness and inform.
*These images & captions are not to be reshared without prior permission*
Please just take a few minutes to watch this video as it shows how easilyInfantile Spasms can be misdiagnosed.
Your child may be developmentally delayed because of a potentially treatable form of epilepsy that is overlooked: infantile spasms are often misdiagnosed as colic, reflux, or exaggerated startled reflex because they can be very subtle. Watch this video to see the signs and know how to react in these potentially life-threatening situations with your baby. #ISAW2018 #InfantileSpasms #BabyCrunches Share in your communties.
Posted by Child Neurology Foundation on Sunday, 2 December 2018
For more information please visit ISweek.org and help spread the word #ISAW2018.
Infantile spasms can cause catastrophic damage to a child's brain – but many parents don't know what to look out for. Please watch and share our video and help us spread the word during Infantile Spasms Awareness Week (1-7 Dec). You can also find support and advice through our Facebook group at https://m.facebook.com/groups/1600888383553097 💜 #ISAW2018 #UKIST #infantilespasms
Posted by UK Infantile Spasms Trust- UKIST on Saturday, 1 December 2018